Skip to main content

Waiting Games

The old saying about the waiting being the hardest part is so true. I learned that early on when I had to wait 4 days from diagnosis to initial Dr. appointment.

And now I'm stuck waiting again... for my exact chemo start date.

We met with my nurse practitioner, Suzanne, on Monday. She gave me another binder (this is my second official "cancer information binder" now) with all of the chemo information - what each drug does, when to call in an emergency, a calendar to write in all of my infusion days, shot dates, and Dr. appointments, prescriptions, etc. We went over all possible side effects, and toured the facility. Everyone there is very nice, and the recliners that I'll be "relaxing" in for 4 hours every 2 weeks seem great. I kept thinking that as great as that all was..the fact remains that the next 16 weeks are going to be very difficult. But the truly great thing is that although all of this is going to be hard..it's all for a very, very, very good reason.

I keep saying that having cancer is a full time job. I don't understand how people can continue to work while being treated for the simple fact that I have to be somewhere almost every day. If I'm not scheduled for an infusion or a shot or a Dr. appointment, I have a ton of meds I'll have to take. And when I'm not taking the meds, the nurse advised I'll probably feel really run down.... and guess what!? Then it's time to start the process all over again.

So now I wait. They said we are just waiting on insurance authorization and then they will call me with my start date. It will be next week for sure though. I hate waiting. I know it's going to suck, but let's just get going so the sucky part can be over quicker!!

Comments

  1. Soon this will all be a distant memory. I can't wait to hear you say I'm done with treatments. You are so very brave and loved by so many people. The waiting and the unknown of exactly how you will react to the treatments is difficult. Those who went before you know exactly the anxiety you are feeling and wish you didn't have to make this journey. You are truly an inspiration. Love Mama

    ReplyDelete

Post a Comment

Popular posts from this blog

Beauty in Life and Death

This is Matt unfortunately Melissa did not get finish her last entry so I will take it from here.  I will try not to have any typos or grammatical errors.  Melissa would really not like that, but she was my official proof reader for all important documents. Melissa and I always strived to look for beauty even in the darkest of times.  It is not always easy but it is always there when you look hard enough.  Our situation the last year and half have not been ideal there were lots of tears and dark times, but the beauty was overwhelming. Whether it was a note, meal, flowers, or text a a low point or just the love we felt from family or friends.  The beauty was there.  We had so many people praying for us and for Melissa to beat cancer once and for all, but I also prayed that Melissa would be pain free and if it was God's will that she passed peacefully.  Melissa was in so much pain last year.  She did not let her slow her down but she was hurting.  She packed more into a year with

Sigourney Weaver

Years ago (okay, fine...decades ago) in high school some boy jokingly called me Sigourney Weaver. I don't remember all of the details of how or why that nickname came about, but it's sort of funny that she and I do have a lot in common now. Well, the Sigourney Weaver of 1997 or whenever "Aliens" came out. Bald, badass, and with an alien growing inside of us!! My alien will be removed tomorrow morning though, Thank GOD! I'm SO over having this gross bump that hurts more and more every day. The other day I couldn't even put my jeans on without it pinching my little alien baby. It turns out I'm developing a "day before surgery" routine. I go shopping. Today it was the first ever "Back to School" shopping for Reagan! She starts Kindergarten next month, so I figured we should get her some new clothes before the full effects of radiation kick in and I'm too tired. (Wait.... I don't think anything will ever make me "too tired&qu

It's Baaaaaaccccckkkkk.......

6 years.... that's how long it's been since I finished with active treatment. However, I took Tamoxifen for 5 years to squash any estrogen left in my body. I recently switched over to a "tougher" aromatase inhibitor call arimidex. These drugs provided comfort and faith that I was doing everything in my power to prevent a recurrence. Guess what?! They failed me. Big time. It's back, and it's back all over. After months of hip pain that my NP chalked up repeatedly to muscle pain, she finally sent me to an orthopedist. He took X-rays and did NOT like what he saw. Additional blood work and bone scans have led to the diagnosis of cancer pretty much throughout my skeletal system. Metastases were found in the skull, scapula, multiple ribs, pelvis, both hips, and spine. Definitely NOT the news I was expecting nor wanting to hear. After an afternoon of crying and occasionally feeling like I was going to throw up, Matt and I met with Dr. Adler, my oncologist. He was