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Showing posts from July, 2018

The Little Engine that could.......

What a roller coaster life has become lately.. and not the fun one that grabs your heart and spins you around having fun all night long.   This is a grab you by the seat of of your pants and make you hold the pee in while fearing for your life. I've been in great fear for my life recently and have no clue when the train will stop. I've lost two days of my life this week out of sheer use of medicine and hiding out in fear. So apparently my one chemo infusion worked and the bilirubin was on its way up again so we nipped that in the bud. Dr. Adler said it was a Hail Mary pass and hopefully the chemo will keep it down. Monday we have more blood work and then we hopefully wanted, but it'll show if we can continue or not.  We'll I'm not giving up easy so I know I'll be doing another round. In other hospice news, this organization is vital to the family right now.   Tess, the social worker, is beyond amazing.  The girls adore her. They LOVE when she comes, they spe