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Showing posts from November, 2017

UCSF

It's taken me a full 24 hours to process our meeting at UCSF yesterday. Matt and I left and were both completely blown away and in awe of Dr. Rugo.   I have no idea really what she said. She was hands down the smartest person both Matt and I have ever met. I wish my brother Chris was with us at the meeting... he would have known exactly what to ask, what she was saying, and been able to translate for us. We spent almost two hours with her. We have a plan, and I have a LOT more information than I had before. We first started going over my history.  Essentially she said that it's crazy (although she used a way more scientific word than "crazy") that my cancer came back. She acknowledged that I did EVERYTHING I could to beat it, and followed a very strict and harsh protocol. So she said our first step is to find out why. That's the million dollar question. I have been asking God why...but Dr. Rugo is the one who may actually be able to answer it. (Although I think

Scan(tatstic)

Today was the big day. I woke up feeling confident and great. Matt and I went to lunch and headed to Dr. Adler's office. My appointments are usually at 2:00, so we arrived a tad early at 1:40. Turns out today's appointment wasn't until 2:30. Seriously, waiting that extra half an hour almost put my nerves over the edge. After what seemed like forever, we finally saw Dr. Adler. Then he about killed me when he started the appointment discussing everything BUT the scan results. I've been having some neuropathy and so we talked about that and other side effects. I was grasping onto my grandma's rosary and I think I almost broke the beads off with stress and anticipation. Then I heard what sounded like music to my ears: "The CT scan shows improvement." He went on to explain that the tumors in my liver have shrunk, the bones have stayed stable, and there is NO EVIDENCE of cancer in my lungs!!! I started crying a little. Then he went on to say that there are t

Scan(dalous)

Today was the day of the much anticipated scan. As I've had two CT scans since diagnosis, I know the drill and it didn't seem like it would be a big deal. Matt and I arrived at 8:00 am, and they handed over the disgusting drink that I had to finish in an hour. I love that they make sure to let you know it was flavored with Crystal Light, to enhance the flavor. I can only imagine how nasty it would taste without the Crystal Light. It seriously tastes like rancid orange juice. But, a girl's gotta do what a girl's gotta do...so I gulped it down as quickly as I could. A little after 9 they called me back for the actual scan. This is when things took a turn for the worse. I told the scanners that they could use my port as it's a "Power Port." The hospital didn't have documentation of this though and said that it is NOT a "power port" and they needed to start an IV. I knew they weren't right but figured I'd let them try and find a vein. B

Light the Night .... and more

I've been meaning to post an update for a long time now, but time eludes me. A few weeks ago, the community came together in the most amazing way. They organized a "Light the Night" walk for me, and other sick members of the community. The event was put together in a few weeks and coincided with a visit from my Aunt (and godmother) Gina and Uncle Kevin. It started in the school yard with the selling of paper lanterns and fabric squares that everyone wrote their sweet sentiments on. The SR choir sang "This Little Light of Mine," followed by a group of women singing "I'll Stand by You." Well, clearly at this point I was already crying. But the waterworks really started after when Fr. Tony, my sister in law Lisa, and then my group of girls; Jess, Airen and Trish all read poems and blessed me.  It's a good thing I had a hat and mask on my face (due to low white blood cells) or I would have really been frightening looking. From the yard, we walked (