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All About the Bilirubin

Here we are again. I feel like I can just cut and paste a post. We saw Dr. Adler today and it was basically a "no news" appointment. Which, don't get me wrong, is WAY better than a "bad" news appointment.

My bilirubin went from 4.4 down to 4.1. Down with the bilirubin is always what we want, we just wanted it down a bit more in order to convince Dr. Adler to treat me. Which is where "Groundhog Day" begins. We follow the same schedule yet another week. Hospice will do blood on Monday, Dr. appt on Thurs., and he said hopefully if the bilirubin is in the 3's I can convince him to do treatment.

I trust all the prayers and positive energy and good thoughts are pushing me forward. The numbers are coming down on their own without treatment. I understand that at anytime this can change, but for now...it's not. For now.. I made it to my first goal.

Back in June was when Dr. Adler first mentioned hospice and said I had "weeks to months." Well, it's been weeks, it's actually been 2 months. I got to see my kids off to school one more year. We did the whole photo shoot, and Matt and I went to first day of school mass. Not only did I make it to that, I feel really good today too. So now we're moving our game pieces to Sept 16...Reagan's 12 birthday.

My bet is on me.




Comments

  1. UnknownAugust 27, 2018 at 7:11 PM

    My bet is on you Melissa. Take this one day at a time, one moment at a time and we will continue to prayer for you often. So happy to hear today is a good day. I will start envisioning the number 3 next to your bilirubin score.

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