It doesn't seem like I do much these days, yet I have been too busy to blog in a while.
Last week my hair started falling out. I was told it "probably" wouldn't happen. It did. Big time. I was combing my hair in the shower and chunks just came out. I cried, I was mad, then I remembered how much I like being bald and it got better. It's just hard this time since I have no end date for chemo...at least last time I knew it was 8 rounds. Now...it's a forever thing. Sucks.
Bone infusion was last Thursday. I had an appointment with Dr. Adler first, which went well. He told me he's not a fan of scans... I told him I AM, at this point, a big fan of scans. So my next scan is tentatively set for the first week of November. Once I have an actual date, I can call UCSF and make an appointment there for the following week. I'm excited to go there and hear what they have to say. I'm excited (and nervous) for the scans because I want proof that the chemo is working. I need to know these nasty tumors are shrinking in my lungs and liver.
The bone infusion itself is easy peasy. They took my blood first to check my hemoglobin. It has been low and if it fell "dramatically" I would need a blood transfusion. UGH. I can't think of anything creepier than random people's blood in my body. Thankfully the hemoglobin is hanging steady at an 8. Apparently it should be a 12, and 7.5 is transfusion time - so I'm really toe'ing the line.
The weekend off of chemo was decent. I was able to enjoy soccer on Saturday and mass and painting with some friends yesterday. Unfortunately, it all caught up to me today. The infusion causes bone pain as we know, but it all hit me today and I was an emotional wreck. I felt nauseous, cold and clammy, was totally in pain, and just tired of being this sick person. I went in to work late, and actually being out in the sun made me feel a little better. Work always cheers me up. It's hard to be in a bad place surrounded by hilarious 11-14 year olds... not to mention I get to talk about reading and writing all day. So work is definitely one of my happy places these days.
This week I'm gearing up for chemo on Friday. I've promised Matt that after chemo on Friday I will REST until Monday morning. I can't push it and try and be a superhero....it hasn't been working out for me. I need to give it up to chemo and rest while it works it's magic on these tumors.
Last week my hair started falling out. I was told it "probably" wouldn't happen. It did. Big time. I was combing my hair in the shower and chunks just came out. I cried, I was mad, then I remembered how much I like being bald and it got better. It's just hard this time since I have no end date for chemo...at least last time I knew it was 8 rounds. Now...it's a forever thing. Sucks.
Bone infusion was last Thursday. I had an appointment with Dr. Adler first, which went well. He told me he's not a fan of scans... I told him I AM, at this point, a big fan of scans. So my next scan is tentatively set for the first week of November. Once I have an actual date, I can call UCSF and make an appointment there for the following week. I'm excited to go there and hear what they have to say. I'm excited (and nervous) for the scans because I want proof that the chemo is working. I need to know these nasty tumors are shrinking in my lungs and liver.
The bone infusion itself is easy peasy. They took my blood first to check my hemoglobin. It has been low and if it fell "dramatically" I would need a blood transfusion. UGH. I can't think of anything creepier than random people's blood in my body. Thankfully the hemoglobin is hanging steady at an 8. Apparently it should be a 12, and 7.5 is transfusion time - so I'm really toe'ing the line.
The weekend off of chemo was decent. I was able to enjoy soccer on Saturday and mass and painting with some friends yesterday. Unfortunately, it all caught up to me today. The infusion causes bone pain as we know, but it all hit me today and I was an emotional wreck. I felt nauseous, cold and clammy, was totally in pain, and just tired of being this sick person. I went in to work late, and actually being out in the sun made me feel a little better. Work always cheers me up. It's hard to be in a bad place surrounded by hilarious 11-14 year olds... not to mention I get to talk about reading and writing all day. So work is definitely one of my happy places these days.
This week I'm gearing up for chemo on Friday. I've promised Matt that after chemo on Friday I will REST until Monday morning. I can't push it and try and be a superhero....it hasn't been working out for me. I need to give it up to chemo and rest while it works it's magic on these tumors.
You are such a beautiful person in every way. Sending lots of love to my precious niece. xoxo
ReplyDeleteYou are an inspiration to all who read this blog. I am so proud of you. You will never know how much you mean to us and how we love you. Keep up the fighting spirit. You go girl. Kill those cancer cells.
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