I haven't blogged recently as I've been trying to wrap my head around everything that is going on, and trying to enjoy the last bit of summer fun with the family in Tahoe. I forgot how busy things get once a cancer diagnosis is made. There are calls from this doctor and that doctor, appointments made for this, that, and the other thing. There is the incessant waiting, which is by far the worst part. There are the good days, the bad days, the ugly days, and the "I'm too busy to even deal with this shit" days. But no matter what type of day it is, I force myself to do at least one thing positive towards my recovery. Okay, that's not true... MATT forces me to do at least one positive thing a day. I can confirm that if it weren't for him, some days I probably wouldn't get out of bed. I've always said he's a Pollyanna, and I am so grateful that he is my pollyanna. Something as little as forcing me to have my morning coffee outside with him as we chat about stuff can turn my mindset around and at least give me a few good hours.
Okay, but besides Matt, a lot of other good things have been happening too. Liver biopsy is scheduled for Tuesday. I start to feel nauseous when I think about it. It just seems so disgusting to have a long needle being stuck into an organ and plucking at a tumor. I'll be at the hospital from 8 am until 3 or 4 pm. Yet the actual biopsy is only about 10-15 minutes. Due to the risk of excessive bleeding, I'll be in recovery for 3-4 hours.
Next Thursday is my Zometa infusion. This is to strengthen my bones...help prevent any more random breaks and hopefully heal some of the broken bones. Of course with any treatment there are risks of side effects. I find it funny that one of the most common side effects of zometa is "achy bones." Ummm.... okay.....
But.... drumroll please..... the MOST exciting news is that I have an appointment at MD Anderson in Houston on August 30!!!! They are requesting all of my medical history, and will get a copy of the liver biopsy results. Matt and I have to get all of the scans on a CD and bring that with us too. We meet with the oncologist on 8/30 and they will either agree with Dr. Adler's course of treatment, suggest a different one, or put me in a clinical trial. This is HUGE!!! MD Anderson is a leading cancer institute. They are on the cutting edge of treatment. I NEED CUTTING EDGE! I am all about cutting edge... I was MADE to be in a clinical trial. If it can't cure me, at least I can be a source of great info for the future of cancer treatment for others.... Right?! I can hope that I'm that important at least!
They told me to ask Dr. Adler to postpone starting treatment until after they meet with me. But if he thinks it's too urgent to wait, they said to listen to him. If that happens, then they will not treat me until the results of his treatment are determined.
So... I'm going to Houston. I've got a ton of hope in my pocket, my husband will be by my side, and the strength and prayers everyone around the world has been sending me will be in my heart.
Okay, but besides Matt, a lot of other good things have been happening too. Liver biopsy is scheduled for Tuesday. I start to feel nauseous when I think about it. It just seems so disgusting to have a long needle being stuck into an organ and plucking at a tumor. I'll be at the hospital from 8 am until 3 or 4 pm. Yet the actual biopsy is only about 10-15 minutes. Due to the risk of excessive bleeding, I'll be in recovery for 3-4 hours.
Next Thursday is my Zometa infusion. This is to strengthen my bones...help prevent any more random breaks and hopefully heal some of the broken bones. Of course with any treatment there are risks of side effects. I find it funny that one of the most common side effects of zometa is "achy bones." Ummm.... okay.....
But.... drumroll please..... the MOST exciting news is that I have an appointment at MD Anderson in Houston on August 30!!!! They are requesting all of my medical history, and will get a copy of the liver biopsy results. Matt and I have to get all of the scans on a CD and bring that with us too. We meet with the oncologist on 8/30 and they will either agree with Dr. Adler's course of treatment, suggest a different one, or put me in a clinical trial. This is HUGE!!! MD Anderson is a leading cancer institute. They are on the cutting edge of treatment. I NEED CUTTING EDGE! I am all about cutting edge... I was MADE to be in a clinical trial. If it can't cure me, at least I can be a source of great info for the future of cancer treatment for others.... Right?! I can hope that I'm that important at least!
They told me to ask Dr. Adler to postpone starting treatment until after they meet with me. But if he thinks it's too urgent to wait, they said to listen to him. If that happens, then they will not treat me until the results of his treatment are determined.
So... I'm going to Houston. I've got a ton of hope in my pocket, my husband will be by my side, and the strength and prayers everyone around the world has been sending me will be in my heart.
That sounds fantastic ...
ReplyDeleteSuch exciting news and with your positive attitude, I am confident you will get the answer you have been looking for. Sending good vibes and prayers your way.
ReplyDeleteHOUSTON for the WIN!!!!!!
ReplyDelete💖🙏🏼😘
ReplyDelete